It was typical for Jennifer Smith* to meander through different wards of the nearby hospital in Ghana where she volunteered after the day’s classes. But on one less-than-typical day, in the children’s ward, she saw her post-college plans snap into focus where they had once been hazy.
Once he made the decision to go, traveling from the United States to the United Kingdom for graduate study in technology policy seemed fairly straightforward for Paul Monroe – until it came time to figure out how two different health systems would cover the same (expensive!) treatments he used back home in Pittsburgh, Pennsylvania.
Navigating local educational institutions, health care systems, or border customs are not always easy to understand. Differences in treatments, rules about importing medications, and varying definitions of disability can compound the confusion.
In the cafeteria lunch line of the Cité Scolaire Albert Camus, I stood between two high school teachers and a small group of giggling junior high girls who recognized me as “elle,” or “her”— the American girl who was spending a year as an English language assistant. Shyly, one of the girls dared to test out her English skills, and tentatively offered a greeting, “Hello?”
With a deep-fried scorpion staring at me from the end of my chopsticks, I couldn't help but think how this delicacy in China would stump even my best diabetes doctors in the United States. How much insulin does my body require for a scorpion?!
In Italy, my friend Neika always did the haggling for me. Left to my own devices, the shopkeepers would have taken me for thousands. She was skilled at bargaining and probably the reason I came home with so many delightful souvenirs and jewelry from Venice.
It is not just with bargaining that I have trouble “putting myself out there.” Despite my tendency to shy away from things, I have always had very big plans for myself. Early in high school, I realized that I wanted to travel extensively, earn a PhD degree, and live an adventurous life.
University student Emily Block has circumvented the globe, hiked in the Amazon, touched a wild cheetah, and danced through Ghana.
Years earlier, when Emily was first diagnosed with a rare chronic illness, such experiences seemed out of reach. Today, it's impossible for Emily to imagine a life without international travel.
"Fourteen countries later, I know that being disabled doesn't mean I have to give up on my dreams."